Updated 05 Sep 2026
CDKL5 UK
1207922
Charity number
£60,140
Reported income
£29,130
Reported spending
| Status | Registered |
| Structure | Charitable Incorporated Organisation |
| Registered | 18 Apr 2024 |
| Latest accounts to | 31 Mar 2025 |
| Based in | Bristol, BS9 4PN |
| Activities | To preserve and protect the health of individuals diagnosed with and affected by CDKL5 in particular by, providing assistance and advocacy in the form of support groups for the patient community. Providing up to date and relevant information to individuals and their representatives diagnosed with the condition. |