Updated 05 Sep 2026
DESMOID AID UK
1207309
Charity number
£8,134
Reported income
£963
Reported spending
| Status | Registered |
| Structure | Charitable Incorporated Organisation |
| Registered | 05 Mar 2024 |
| Latest accounts to | 31 Mar 2025 |
| Based in | Littlehampton, BN17 7FH |
| Activities | Desmoid Aid UK is a non-profit charity providing information for patients and their families when they have been diagnosed with Desmoid-type fibromatosis. The charity provides links to information and resources about the disease. We also provide a small grant to help pay for unexpected costs for newly diagnosed patients undergoing treatment. |