Updated 05 Sep 2026
KEEP ME BREATHING
1201757
Charity number
£134,340
Reported income
£174,625
Reported spending
| Status | Registered |
| Structure | Charitable Incorporated Organisation |
| Registered | 27 Jan 2023 |
| Latest accounts to | 28 Feb 2025 |
| Based in | Hove, BN3 7JH |
| Activities | Keep Me Breathing is a patient, scientific and engineering led organisation which helps and supports people with Congenital Central Hypoventilation Syndrome (CCHS) a rare genetic disease. It helps people who suffer from CCHS and we receive worldwide enquiries. We are involved in research with the University of Cambridge Consulting Society to find a treatment for CCHS. |