Updated 05 Sep 2026
INTERNATIONAL PRADER-WILLI SYNDROME ORGANISATION
1182873
Charity number
£206,698
Reported income
£220,970
Reported spending
| Status | Registered |
| Structure | Charitable Incorporated Organisation |
| Registered | 09 Apr 2019 |
| Latest accounts to | 31 Dec 2025 |
| Based in | Cambridge, CB1 2LA |
| Activities | IPWSO works to improve the quality of life for all people with Prader-Willi syndrome and their families worldwide. We provide information and support to caregivers, professionals and families. We encourage national PWS associations to exchange and share their projects and experiences. We fund free testing for diagnosis in countries where it is not available. |