Updated 05 Sep 2026

RING20 RESEARCH AND SUPPORT UK CIO

1165651
Charity number
£37,103
Reported income
£35,758
Reported spending
StatusRegistered
StructureCharitable Incorporated Organisation
Registered19 Feb 2016
Latest accounts to31 Mar 2025
Based inPoole, BH16 6FA
ActivitiesWe provide support and information to individuals, families and health professionals who are affected by, or come into contact with Ring Chromosome 20 Syndrome, or r(20) for short, an ultra-rare disease, the main symptom being difficult to treat epilepsy.We raise funds to help promote research into r(20) to try to improve overall quality of life for those living with the disease.

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