Updated 05 Sep 2026
CYSTINOSIS FOUNDATION OF THE UK
1074885
Charity number
£34,431
Reported income
£19,238
Reported spending
| Status | Registered |
| Registered | 26 Mar 1999 |
| Latest accounts to | 31 Mar 2025 |
| Based in | Birmingham, B2 2NJ |
| Activities | To provide support to anyone diagnosed with cystinosis, as well as their families and friends.To highlight the disorder to members, the medical profession and the wider community.To assist in the promotion of research into the treatment of cystinosis.To work alongside other similar organisations in understanding more about metabolic disorders in general |